Independent, non-profit organization that collects and translates sport injury and treatment data and specializes in epidemiological research in sport and other physically active populations. Primary programs are with the NCAA, NAIA, and high schools as well as through concussion assessment, research, and education. Data collection is project-specific, and include areas such as athlete demographics, injury information, injury event information, and sport-specific information.
Formed in 2010 within the Indiana Clinical and Translational Sciences Institute (CTSI). Aids discovery research including academic, nonprofit, and commercial research entities to treat and prevent diseases. DNA is banked from patients with over 50,000 samples banked to date and growing. Other sample types such as serum, plasma, RNA, PBMC, urine, saliva and tissues are collected by request. All samples are linked to the INPC, and de-identified data linked to samples can be provided to researchers. Omics data is also available to academic and nonprofit collaborators.
Nonprofit, discovery science and applied research institute targeting diabetes, metabolic disease, poor nutrition, and related health data science. IBRI exists to bring together companies and universities to work collaboratively on interrelated health issues.
Data team within the statewide Indiana Clinical and Translational Sciences Institute investigating social determinants of health, patterns of healthcare and social service utilization, justice involvement, and residential mobility to identify opportunities for intervention and improve health equity in Indiana. Leveraging clinical, justice, public health, and community-based organizational data in Marion County, representing 14 data sources and about 28 million individuals.
Nonprofit founded by healthcare, business, and academic stakeholders to manage the Indiana Network for Patient Care (INPC), the nation’s largest inter-organizational clinical data repository. IHIE enables access to the INPC data to support hospitals, physicians, laboratories, payers, and other health service providers avoid redundancy and deliver faster, more efficient, higher quality healthcare to patients in Indiana. The INPC includes 20+ years of clinical data across health systems and physician practices.
IHA’s mission is to provide leadership, representation, and services in the common best interest of its members as they promote the improvement of community health. IHA is responsible for collecting and validating both inpatient and outpatient administrative claims data from all licensed hospitals (Acute, Rehab, Psychiatric, and Long-Term) and provides flat files of cleansed data monthly to the Indiana Department of Health for research and public policy purposes.
Indiana University is home to top-ranked business and music schools, the world’s first school of philanthropy, the nation’s first school of informatics, and the country’s largest medical school. To better prepare students for the careers of tomorrow, IU has launched or reconfigured 10 schools in the last decade, and is constantly adding new academic programs, like IU Bloomington’s Intelligent Systems Engineering program and IU Online’s 100% virtual Master of Science in Educational Technology for Learning.
This section highlights various Centers and Institutes at Indiana University on three campuses – IU-Bloomington, IUPUI, and IU School of Medicine to highlight work impacting the health-data intersection and invite collaboration.
A world-renowned, public research university that advances discoveries in science, technology, engineering and math. Through the five pillars of Purdue Moves — affordability and accessibility, online learning, transformative education, world-changing research, and STEM leadership — Purdue is leveraging its historic strengths to promote investment in new ideas and realize its mission to deliver higher education at the highest proven value. Purdue researchers are harnessing expertise across the life and engineering sciences to address some of the greatest challenges facing society today. Their mission is supported by the university’s $250 million initiative announced in 2016 to advance research that improves quality of life for people around the globe. The Purdue Life Sciences Initiative is supported by research cores, state-of-the-art facilities designed for cross-disciplinary collaboration, and interdisciplinary graduate programs.
Within the profile for Purdue University are deeper profiles on ten Centers and/or Institutes to highlight their work and invite engagement to collaborate.
Nonprofit, world-renowned research organization founded in 1969. Innovation is driven by several organizational units: the Center for Biomedical Informatics, the Center for Health Services Research, the Center for Aging Research, Logical Observation Identifiers, Names and Codes (LOINC®) and Health Data Standards, home of a globally adopted (in nearly every country) universal code system for tests, measurements, and observations, and Regenstrief Data Services (RDS), providing research data management and services including access for research to the Indiana Network for Patients Care. Key data sources informing Regenstrief research and its applications include: i) Indiana Network Patient Care for Research (INPCR), ii) Electronic Health Record Systems for IU Health and Eskenazi Health, and iii) Research Networks – Patient Centered Outcomes Research Network (PCORnet), and Accrual to Clinical Trials (ACT). Regenstrief Institute was selected as the Linkage Honest Broker (LHB) for the National Institutes of Health’s National COVID-19 Cohort Collaborative (N3C), a nationwide integrated repository for COVID data. The LHB develops and operates a Privacy-Preserving Record Linkage platform that anonymously links COVID-related data including mortality, viral variants, claims, laboratory tests and vaccines.
The University of Notre Dame has a vibrant research community making advancements across many STEM disciplines. The University’s research profile has grown while focusing on a number of strategically important fields of study to deepen and engage with the community, including a commitment to address global and community issues including, Poverty, Health Disparities, Well-being, Education, Food Insecurity, Housing, Sustainability, Cancer, Mental Health and more. To this end, the University received $172.5M in research grants in FY20.
Within the profile for the University of Notre are deeper profiles on 10 Centers and/or Institutes to highlight their work and invite engagement to collaborate.