| Diabetes Data-Linkage Pilot |
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| IBRI has a focus in diabetes and factors related to its risk and progression. This project is linking clinical data with Social Determinants of Health (SDoH), which are critical to identify key risk factors and interventions | ||
| Overview | This project will set the framework for securely linking data from clinical sources (Indiana Health Information Exchange - IHIE, IU Health - IUH, and Regenstrief Institute) with state sources (Management Performance Hub - MPH) for future non-profit, commercial, and public health efforts. The specific project outcomes are: • Prove that we can cross-link clinical and SDoH (education/workforce) data securely • Understand data coverage between IHIE/IUH that are critical for diabetes risk factors • Create specific low-risk SDoH categories from real-world MPH data related to household income and education that correlate with risk of poor health outcomes and validate against standard measures • Leverage this cross-link between clinical and SDoH data to further support the statewide diabetes strategy led by Indiana State Dept. of Health (ISDH). This project will enable a broader understanding of SDoH factors driving diabetes in Indiana • Plan future efforts to make these SDoH measures available to other projects. Additionally, plan future efforts of additional SDoH measures from other state data sources managed by MPH |
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| Lead Org | Indiana Biosciences Research Institute (IBRI) | |
| Participating Orgs and Roles | • Indiana Health Information Exchange (IHIE): Clinical data access expertise from the Indiana Network of Patient Care (INPC) • Indiana University Health: Potential data access and expertise around the IUH enterprise data warehouse • Management Performance Hub (MPH): Access of social determinants data from Education and Workforce database enabled by Dept of Education (DOE), Commission for Higher Education (CHE), and Dept. of Workforce Development (DWD). Additionally, usage of enhanced research environment (ERE) for linkage and analysis • Regenstrief Institute: Data access (as needed) and expertise around the Indiana Network of Patient Care (INPC) and linkage to MPH data |
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| History/ Funding | • Initial work linking SDoH with clinical data done by Regenstrief Institute and MPH around opioids in 2019 • Project conceptualized early 2020 and approved by INPC Management Committee in May 2020 • Currently self-funded by the participating organizations |
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| Data Leveraged (primary and secondary) |
• Clinical data related to diabetes patient electronic health records (EHRs) from the Indiana Network for Patient Care (INPC) and the Indiana University Heath enterprise data warehouse (EDW)  |
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Community Impact
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• This project will set the framework for securely linking data from clinical sources with state sources (MPH) for future non-profit, commercial, and public health efforts • This will enable to both assess and monitor factors that are critical to improving the health of Indiana citizens and optimizing policies, interventions, and improvements in an individual’s environment for improved health outcomes |
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| Future Focus Areas | Identify additional organizations that need this data to support their research or community-based efforts to improve health outcomes Locate additional funding to productionize these capabilities to support additional resource efforts |
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| Resources | Please contact Dan Robertson at drobertson@indianabiosciences.org to learn more and/or understand how your organization can follow these processes to support your efforts | |